Mar 29, 2023
Leading experts in public policy, economics, and science will focus on the rare and chronic disease plight before lawmakers, regulators and insurers. WASHINGTON — Patients Rising, a non-profit organization advocating on behalf of patients with chronic and rare...
Mar 20, 2023
By MacKay Jimeson In a proclamation last year, President Joe Biden said, “in the next 30 years, the number of Americans with Alzheimer’s is expected to reach nearly 14 million, straining families and our health care system. Fortunately, we are on the cusp of...
Feb 28, 2023
By MacKay Jimeson Too many patients and families are in crisis as we mark another Rare Disease Day. Policymakers are focused on debates on Accelerated Approval and drug pricing, while many patients are without treatment due to regulatory or insurance coverage...
Jan 25, 2023
Dec 20, 2022
Recent advances in biologic medicines have revolutionized the treatment of many illnesses and conditions, from cancer to autoimmune diseases and many others. The FDA is also approving an increasing number of biologic treatments – including biosimilars –...
Nov 17, 2022
Press Contact: Sarah Shelsonsshelson@riesterpublicaffairs.com New framework for the evaluation of rare disease therapies prioritizes patient experiences, feedback, and needs WASHINGTON — Patients Rising, a non-profit organization that advocates on behalf of patients...
