Preserve Hope and Access to Live-Saving Treatments

Hope is a powerful elixir. My family was dealt an unexpected blow nearly 26 years ago when our son Gunnar was diagnosed with cystic fibrosis, a debilitating genetic disease for which there is no cure. At the time, the diagnosis was akin to a death sentence because...

Preserve Hope and Access to Life-Saving Treatments

Hope is a powerful elixir. My family was dealt an unexpected blow nearly 26 years ago when our son Gunnar was diagnosed with cystic fibrosis, a debilitating genetic disease for which there is no cure. At the time, the diagnosis was akin to a death sentence because...

Cystic Fibrosis 2018

Overall, we respect and encourage the trend toward value and will continue to lead meaningful conversations and a deeper dialogue around the meaning of value-related initiatives for patients. We believe patients’ voices need to be a part of defining and assessing the...