Making effective decisions in health care requires a thorough understanding of the patient perspective, as well as robust, precise measures of response to therapy. The Patient Access & Affordability Project evaluates the various frameworks used to assess and demonstrate the value of new treatments to ensure that the patient is kept at the center of health care decisions.
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The Conversation
National Health Issues Survey Results: Access & Affordability
Patients Rising - in coordination with Gravis Marketing, a leading market research and polling firm - recently conducted a survey to better understand American voters' views on various national health issues. The data from the survey - which was conducted in late...
Comments on ICER’s May 14th Draft Evidence Report, “JAK Inhibitors and Monoclonal Antibodies for the Treatment of Atopic Dermatitis”
On May 14th, 2021, ICER released a Draft Evidence Report entitled, "JAK Inhibitors and Monoclonal Antibodies for the Treatment of Atopic Dermatitis.” Patients Rising Now responded to the request for comments on the report. The comments noted that complex health...
The N-QOL: A Critical Breakthrough in Measuring Health Outcomes
In this space, we spend a great deal of time talking about the methods some health economists use to measure health outcomes and the value of new treatments. For example, we've gone to some lengths to explain why analyses and valuations based on the quality adjusted...
Comments on ICER’s May 5 Draft Evidence Report, “Aducanumab for Alzheimer’s Disease: Effectiveness and Value”
On May 5, 2021, ICER released its Draft Evidence Report entitled, “Aducanumab for Alzheimer’s Disease.” Patients Rising Now submitted comments on the draft report. As stated in the comments, the goal for researchers and clinicians – and hope for patients – is to...
Patient Survey on Occipital Neuralgia
The Occipital Neuralgia Foundation and Patients Rising partnered to conduct a survey to better understand the unmet needs within the Occipital Neuralgia (ON) community. ON is a distinct type of headache characterized by piercing, throbbing, or electric-shock-like...
Thirty Wasted Years: The QALY and the rules of fundamental measurement
In 2018, the UK’s National Institute for Health and Care Excellence (NICE) produced a valuation study that ultimately recommended that researchers replace the EQ-5D-3L quality of life measure with a modified instrument called the EQ-5D-5L. A lengthy debate ensued....