Making effective decisions in health care requires a thorough understanding of the patient perspective, as well as robust, precise measures of response to therapy. The Patient Access & Affordability Project evaluates the various frameworks used to assess and demonstrate the value of new treatments to ensure that the patient is kept at the center of health care decisions.
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The Conversation
RECOMMENDED READING: It is Time for Outcomes-Based Reimbursement for Biopharmaceuticals
By Robert Popovian & Mark Atalla July 16, 2021 Recently the U.S. Food and Drug Administration granted accelerated approval to aducanumab (Aduhelm), the first Alzheimer’s Disease treatment since 2003. While there has been significant discussion about aducanumab’s...
Happening Soon: Policy & Advocacy Webinar on ICER
On Monday, July 19th, the Pioneer Institute and the Pacific Research Institute (PRI) will host a virtual webinar, titled: Policy Measures on Drug Value: Does ICER’s Approach Improve Patient Access & Equity? The event will feature prominent experts in a discussion...
National Health Issues Survey Results: Trust Among Healthcare Stakeholder
Patients Rising – in coordination with Gravis Marketing, a leading market research and polling firm – recently conducted a survey to better understand American voters’ views on national health issues. The data from the survey – which was conducted in late April and...
National Health Issues Survey Results: European-Style Price Controls
Patients Rising – in coordination with Gravis Marketing, a leading market research and polling firm – recently conducted a survey to better understand American voters’ views on national health issues. The data from the survey – which was conducted in late April and...
VIDEO: ICER on the ‘value’ of treatments for Duchenne
In this space, we've talked a great deal about ICER's failure - often its refusal - to consider the needs and perspectives of patients when determining the value of a new drug or treatment. Patients Rising recently produced a short video about a meeting in 2019 about...
ICYMI: ICER’s Money Problem: A Self-Appointed ‘Drug Pricing Czar’
by Terry Wilcox & William Smith June 22, 2021 While the last year was very difficult for millions of Americans, it was also a period of rapid innovation as leaders in government and the private sector worked to combat a global pandemic. As a result, about half the...